Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE...

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Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition 9ème Edition Merci à tous Subcommittee BHS Subcommittee BHS Hereditary Red Blood Cell Hereditary Red Blood Cell Disorders Disorders http://www.bhs.be http://www.bhs.be

Transcript of Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE...

Page 1: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

Sickle cell disordersSickle cell disorders 

26 February 20109H00 – 16H00 MUSEE DE LA MEDECINE Campus ErasmeRoute de Lennik, 8081070 Brussels

9ème Edition9ème Edition 

Merci à tous

Subcommittee BHS Subcommittee BHS Hereditary Red Blood Cell DisordersHereditary Red Blood Cell Disorders

http://www.bhs.behttp://www.bhs.be

Page 2: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

Les dernières nouvellesLes dernières nouvelles

• Poursuite du remboursement fédéral pour le dépistage néonatal mais seulement dans la Région de Bruxelles Capitale– KCE devrait établir un dossier

Page 3: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

Les dernières nouvellesLes dernières nouvelles

• Au sein de la « Belgian Hematological Society », le sous-groupe dédicacé aux pathologies du globule rouge progresse

• http://www.bhs.be• « Entrée libre »: laisser vos

coordonnées si vous désirez d’être au courant des réunions

Page 4: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

Les dernières nouvellesLes dernières nouvellesClinical Data baseClinical Data base

Data manager: Dr P-Q Lê

Promotors : Dr A. Ferster,

Pr F. Vertongen,

Pr B. Gulbis Physicians : Pr Ch. Vermylen, Dr A. Vanderfaeillie, Dr C. Epalza, Dr C. Heijmans, Dr L. Dedeken, Dr N. Lefevre, Dr D. Dufour, Dr A. Efira, Dr M-A. Azerad, Dr MF Dresse, Dr A Kentos, Dr A Delannoy, …

Computer scientist : Mr B-C Nguyen Secretary : Mme H. Ouled

Grant Iris-Recherche

Grant Novartis

Page 5: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

 WP leader:

 Associated Partners:

 Collaborating Partners:

 

ERASME - Belgium

 CDN - FranceUNIVR - ItalyLGHA - GreeceCHC - PortugalINSERM - FranceKINGS - UK

HUERF - BelgiumUPAD - Italy

 

Les dernières nouvellesLes dernières nouvelles

European project: 48 partners European project: 48 partners from 15 European countriesfrom 15 European countries

Page 6: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

European projectEuropean project WP 4: Sickle cell disordersWP 4: Sickle cell disorders

Tasks:Tasks:• Definition of the facilitiesfacilities necessary to be a SCD

expert centre• SCD centres:SCD centres: Identification of European Sickle Cell

Centres• Guidelines:Guidelines: prenatal screening and antenatal

diagnosis, neonatal screening, follow-up of SCD patients, management of transfusions, management of acute events, management of pregnancy.

• Tutorial:Tutorial: Interactive CD/ e-learning system on SCD for professionals and on prevention for the public

Page 7: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.

Les dernièresLes dernièresnouvelles:nouvelles:Coopération Coopération au au développementdéveloppement

Page 8: Sickle cell disorders Sickle cell disorders 26 February 2010 9H00 – 16H00 MUSEE DE LA MEDECINE Campus Erasme Route de Lennik, 808 1070 Brussels 9ème Edition.